The congress will be starting on the 25th by a genodermatoses full day sessions aiming at including geneticists and dermatologists within the DEBRA community and raise awareness about incidence and updates on management and research of orphan disorders particularly EB specially in the MENA region and Africa where consanguineous marriage is a still a tradition with expected high incidence of those disorders.
The Scientific committee is Co-chaired by Professor Peter Marincovich and G. El-Kamah together with eminent panel of expert Dermatologists, geneticists, biologists, surgeons and industrial representatives to discuss updates on research and appropriate therapy, minimization of adverse events, and strategies to improve patient quality of life.
Educational Objectives:
Review practice-changing data on the efficacy and safety of new and emerging therapies, and determining which treatments are appropriate for which patients
Efficacy data from practice-changing clinical trials on new and emerging therapies
Outline adverse events associated with novel therapies and approaches to mitigate these effects
Patients advocacy able to discuss their needs and whether fulfilled through novel approaches
Ultimately the meeting aims at establishing a Network bridging gaps both on patients’ advocacy and on technology transfer levels to the MENA region and Africa.
