Resources for wound patients and relatives

Here you can find practical information about wound care and managment. 

Remeber to direct any specific questions or concerns regarding your personal wound management journy directly to your healthcare provider. EWMA is not able to advice on specific cases.  

Write to ewma@ewma.org with proposals, ideas, additional material or changes in the current information - we appreciate your feedback. 

 

 

 

 

Awareness Campaign

 

The EWMA "I Wish to Tell You That..." awareness campaign is a powerful initiative that gives individuals living with wounds, their relatives or informal carers, a platform to share their thoughts, feelings, and experiences related to the non-healing wound as well as the treatment and care of the wound. The campaign aims to support an environment of understanding and empathy in the meeting between patients and healthcare providers in wound care.

 

Join the campaign

Join us in advocating for a healthcare environment where dialogue and patient-centered care takes the center stage. We invite you to take part in our #WoundCareDialogue because every #IWishToTellYouThat matters.

 

How to take part: .

  • Record a Video Message: Express your thoughts, feelings, and wishes directly to your healthcare professionals. Your narrative has the potential to inspire understanding and empathy.
  • Share Your Story: Share the triumphs, challenges, and emotions related to having a non-healing wound or caring for one who does
    Send your video together with the signed consent form (available HERE) to: ewma@ewma.org
  • Encourage Others: Spread the word and encourage fellow patients and their relatives to participate.
  • Use the Hashtags: If you post your story or video on social media, use the hashtags #IWishToTellYouThat and #WoundCareDialogue. Join the conversation and amplify the collective impact of patient voices.
  • Reach out to EWMA: If you have questions or need support in sharing your story, feel free to reach out to ewma@ewma.org. We are here to guide you through the process.

 

Let’s advocate for improved communication and compassionate care in wound management through the power of shard narratives. 

 

What do you need?

  • Mobile phone or camera
  • Space with no/little noise (be aware of fridges/freezer) and good illumination.

 

How to film?

Format: Horizontal (16:9) – make sure to place your phone/camera on an even, non-shaky surface or on a tripod, if you have it.

Light: Make sure that your face is in the light. Recording during the daytime is preferable, as you will have natural light. Make sure not to have sunlight behind you. 

Duration: 30 seconds (max.)

 

What to say?

Please complete the following sentence:

I wish to tell you that­­­_____________________________                                                       

 

If you are unsure what to say have a look at the questions below as inspiration:

  • What specific challenges have you faced in relation to the treatment and care of your non healing wound?
  • Can you share a specific moment or experience that highlights the importance of effective communication in your wound care?
  • Were you always aware of the treatment plan for your wound?
  • Have you experienced barriers in communication with the wound care professional(s) responsible for the treatment and care of your wound?
  • Can you think of a positive experience where improved communication benefited your wound healing process?

Please note; you do not need to answer any of the questions. They are simply food for thought :) 

 

Nervous?

Take a deep breath, smile, exhale, look into the camera, and imagine you are talking to a friend. There is no need to change anything in the way you speak or use your body language!

 

Language

Should you not feel comfortable answering the question(s) in English, feel free to answer it in your mother tongue. If possible, please send a transcript and a translation together with your video, to help us with the subtitles.

 

Consent form

To be able to share your video publicly, we need a signed consent form. Please make sure to download and fill out the EWMA video consent form (available HERE) and send it together with your video to ewma@ewma.org.

 

Living With Chronic Wounds

 

Living With Chronic Wounds (LWCW) is a EWMA project that aims to illustrate the experience of wound patients in a number of recorded interviews with patients, and healthcare professional(s) responsible for the treatment and care of the patient, as well as a representative of the healthcare institution. The most common types of non-healing wounds are represented, among others diabetic foot ulcers, pressure ulcers and venous leg ulcers.

View the videos here