EWMA Conference 2018

Dystrophic Epidermolysis Bullosa Research Association (DEBRA)


Session title: Debra International Update on Epidermolysis Bullosa Today

Epidermolysis Bullosa (EB) is an ‘umbrella term’ for a group of rare genetic skin blistering disorders characterised by blister formation in response to minimal trauma or friction. There is a range of cutaneous involvement, from blistering to more generalised wounding. The presence of multiple wounds of varying duration and ability to heal makes management of EB difficult and complex. The underlying principle of lesion management is to apply an atraumatic dressing to prevent pain and bleeding on removal and manage infection.

Stay up-to-date with the latest clinical best practice in skin and wound care for people living with EB, thanks to a session Epidermolysis Bullosa: Essential Wound Care with a Modern Approach, organised by the leading worldwide authority in EB, Debra International.

Topics to be covered include

·         Essential wound care in EB
·         Care of the new born with EB
·         The role of skype clinics in wound care

·         Jane Clapham, Lead EB Clinical Nurse Specialist, Guy’s and St Thomas’ Hospital, London, UK
·         Annette Downe, EB Clinical Nurse Specialist, Guy’s and St Thomas’ Hospital, London, UK
·         Katie Plevey, Lead EB Clinical Nurse Specialist, Great Ormond Street Hospital for sick children, London, UK

Be prepared when you meet a patient with EB – do not miss this opportunity to learn about the condition from three clinical experts.

Debra International is a worldwide network of more than 50 national groups working on behalf of those affected by epidermolysis bullosa, including individuals, families, carers and healthcare professionals. Our mission is to ensure that people living with EB have access to the best support and medical care and drive the development of effective treatments and cures for EB.

To find out how Debra can help you, please visit www.debra-international.org.

Debra UK works in partnership with the UK’s National Health Service, to deliver a comprehensive healthcare solution to people living with EB.